Sinus surgery is finally scheduled for Feb 12th!
For those who've been wondering where I've been hiding the past 12 months, I've been having an ongoing struggle with pain and pressure around my right eye/nose. It seems that we've exhausted the medical options to attempt to treat it, and we're going surgical. There are no guarantees, but here's hoping this finally returns me to my normal self. It has been a very difficult year.
Three things I want to tell everyone that I've learned from this ordeal (which has, in 2012, led me to the offices of no less than 17 doctors and specialists, including GPs, Optometrists, Opthalmalogists, ENTs, and Neurologists):
1) You MUST take ownership of your own health. No doctor will do it for you. Inform yourself, ask tough questions, log and collect good data (and dates!) and generally, use doctors as a tool to get you well. You can NOT take a passive role in your own healthcare. You HAVE TO OWN IT.
2) Modern Medicine isn't like Star Trek. I was gobsmacked that I could endure so many tests, and doctors still couldn't tell me what was wrong with me. *Treating illness* is much easier than *diagnosing illness*, as it turns out. You'd think I'd know this from my own diagnostic-heavy profession, but it never occurred to me. Don't let it surprise you.
3) If you're comfortable, share the details of your ailment somewhere online that's searchable (forget facebook or other social media sites; put it on a blog or webpage with permanent links). If your pursuit of a cure/treatment can help another person, get the word out where a scared and struggling person can find it via Google. You don't have to offer medical advice, just share what you know about what you went through, your doctor's finding, your data, or just how you coped with the uncertainty of the process. I can't tell you how many blog posts were far more helpful, informative, or just plain comforting than the various WebMD-like sites out there.
Very special thanks to all my friends and family that have helped me get this far, and have put up with me. Hopefully, I don't have much further to go before I'm back to my old self.